A few days ago, I realized I’d been crazy to ever say I felt tired before. Because what I’ve experienced since Friday is something beyond tired, it’s a profound fatigue that makes me wish I’d never said I was tired — because now that’s a word I can’t use anymore to describe how I’m feeling. I didn’t expect to feel this way. I’ve always been able to keep going no matter how little sleep I get. I guess I’ve just never felt so wiped out — with so much sleep! — before.
Let’s just say profoundly tired and leave it at that. Naps don’t seem to be helping. I wake up and I’m still beat. I’ve finished ten treatments. I’ve got twenty more to go. That’s a little more than four weeks worth. I guess I’m going to have to get used to being profoundly tired.
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January 9, 2007 at 6:28 pm
marymom
Hang in there, dear. Can I make you guys some dinner? I have cheese enchilada casserole recipe– can I bring that over for your guys and you?
I’ll call you–xxoo,
Mary
January 14, 2007 at 2:44 pm
litlove
Oh my dear, I don’t know how to say how sorry I am to hear this, and also how to say somehow, without equating our situations and doing us both a disservice, that ME sufferers do know a bit how you feel because we have something very similar. It’s the most soul-destroying, identity-removing, future-annihilating fatigue ever. And it’s horrible. But. But it won’t last. You are right to think of the limit set ahead, because once you’ve reached that and had a chance to recover, all will return to normal again. You never know, your body might make the adjustments sooner than that. I have every faith in your party-loving soul. Thinking of you, xx
January 15, 2007 at 1:41 pm
Ann
I spoke to my friend Margaret this morning. She went through this eighteen months ago when she had a stem cell transplant. She said to tell you that the miracle is that it does pass and so does the memory of how awful it is. She went back and read the diary that she kept at the time and was amazed at how much she had forgotten. She also said to tell you that she is thinking of you, as am I.
January 17, 2007 at 4:52 am
Helen
I remember when I was pregnant thinking: “I will punch the next non-pregnant person who complains to me that they’re tired!” But the tiredness you’re experiencing is in a whole other realm. It sounds awful. I am thinking of you too. Roll on February. Please take care.